The Big Question

There’s a hypo­thet­i­cal ques­tion that crops up every once in a while in online autism com­mu­ni­ties, and it’s this:

“We can give your child a shot now, and when he wakes up tomor­row he will no longer be autis­tic. Would you like us to give him the shot?”

Strangely, this ques­tion comes up a lot more online than it does in “the real world,” mostly because as hypo­thet­i­cals go, it’s pretty far out. For instance, while we don’t know much about what causes autism, but we know quite a bit about its phys­i­cal man­i­fes­ta­tion in the brains of autis­tics. One of these is that autis­tics have a dif­fer­ent struc­ture to their brain than other people. Instead of a spi­der­web of inter­con­nected neu­rons, autis­tics seem to have columns of brain tissue with more linear connections.

The reason this is impor­tant is that your brain is you. The struc­ture of your brain deter­mines not only the way you think, but the kind of think­ing you can do. These dif­fer­ences in struc­ture are a part of why it can be so dif­fi­cult for autis­tics to learn cer­tain kinds of infor­ma­tion, and also why they can be so good at other kinds of thoughts.

So when you talk about a “cure” for autism, you’re talk­ing about some­thing that would require re-​wiring the struc­ture of the brain, taking it apart and putting it back together. And that’s impos­si­ble. Not just dif­fi­cult - impos­si­ble. Have you seen the pic­tures of the enor­mous spi­der­web in Texas? Imag­ine a spi­der­web a hun­dred times larger and denser, and then imag­ine trying to use a pair of tweez­ers to recon­nect every strand to turn it into the Taj Mahal.

Worse yet, all of our mem­o­ries are wrapped up in the way that our neu­rons are con­nected, so even if you could rearrange every­thing, you’d be destroy­ing every memory, every behav­ior, every func­tion of the brain in ques­tion. So rear­rang­ing the brain would be like giving some­body a com­plete lobot­omy - like turn­ing them into an infant.

But even if you could get past all of the tech­ni­cal hur­dles that make a cure impos­si­ble, you have to ask your­self, “what would a cure mean?” It would mean chang­ing the fun­da­men­tal iden­tity of the person in ques­tion. The way that a person thinks defines who she is. So part of the “cure” ques­tion is, “Do you want to trade your autis­tic child for a dif­fer­ent child?”

Would I trade Jared’s prob­lems for some­body else’s? Would I give up his strengths in order to get rid of his weak­nesses? If Jared didn’t scream and cry when things didn’t go his way, would he still be com­pletely unwill­ing to lie to me? If Jared was better at making friends, would he still amaze me with his sense of humor? If he didn’t wake me up in the middle of the night, would he still walk every­where hold­ing my hand telling me how much fun we were having?

So need­less to say, I’m not look­ing for some impos­si­ble cure. I like my child and wouldn’t trade him for some­body else. Yes he can be dif­fi­cult, but to be per­fectly honest, an autis­tic boy is no more trou­ble and worry than a teenage girl. And in two months, I’ll have one of each.

September 15th, 2007 · Category: Autism, Family, Medicine · Tags: , , , , , , , , · 2 Comments »