The Big Question

There’s a hypothetical question that crops up every once in a while in online autism communities, and it’s this:

“We can give your child a shot now, and when he wakes up tomorrow he will no longer be autistic. Would you like us to give him the shot?”

Strangely, this question comes up a lot more online than it does in “the real world,” mostly because as hypotheticals go, it’s pretty far out. For instance, while we don’t know much about what causes autism, but we know quite a bit about its physical manifestation in the brains of autistics. One of these is that autistics have a different structure to their brain than other people. Instead of a spiderweb of interconnected neurons, autistics seem to have columns of brain tissue with more linear connections.

The reason this is important is that your brain is you. The structure of your brain determines not only the way you think, but the kind of thinking you can do. These differences in structure are a part of why it can be so difficult for autistics to learn certain kinds of information, and also why they can be so good at other kinds of thoughts.

So when you talk about a “cure” for autism, you’re talking about something that would require re-wiring the structure of the brain, taking it apart and putting it back together. And that’s impossible. Not just difficult - impossible. Have you seen the pictures of the enormous spiderweb in Texas? Imagine a spiderweb a hundred times larger and denser, and then imagine trying to use a pair of tweezers to reconnect every strand to turn it into the Taj Mahal.

Worse yet, all of our memories are wrapped up in the way that our neurons are connected, so even if you could rearrange everything, you’d be destroying every memory, every behavior, every function of the brain in question. So rearranging the brain would be like giving somebody a complete lobotomy - like turning them into an infant.

But even if you could get past all of the technical hurdles that make a cure impossible, you have to ask yourself, “what would a cure mean?” It would mean changing the fundamental identity of the person in question. The way that a person thinks defines who she is. So part of the “cure” question is, “Do you want to trade your autistic child for a different child?”

Would I trade Jared’s problems for somebody else’s? Would I give up his strengths in order to get rid of his weaknesses? If Jared didn’t scream and cry when things didn’t go his way, would he still be completely unwilling to lie to me? If Jared was better at making friends, would he still amaze me with his sense of humor? If he didn’t wake me up in the middle of the night, would he still walk everywhere holding my hand telling me how much fun we were having?

So needless to say, I’m not looking for some impossible cure. I like my child and wouldn’t trade him for somebody else. Yes he can be difficult, but to be perfectly honest, an autistic boy is no more trouble and worry than a teenage girl. And in two months, I’ll have one of each.

September 15th, 2007 · Category: Autism, Family, Medicine · Tags: , , , , , , , , · 2 Comments »