March 16th, 2006 by Jemaleddin Cole
I haven’t posted a lot about autism here on my site, especially considering how big a part of our life it is. Part of that is that I don’t want this page to become a pity party because no matter what it seems like, Jared’s autism is the least of my problems. I’ve got a girl becoming a teenager here, people!
But seriously, the difficulties we face from Jared’s autism are incredibly minor compared to the joy he brings us. I’m not big on crying, but thinking back to the first time he sang “Twinkle Twinkle” to us (well, “Minkle Minkle” anyway) still gets me misty. And for a kid who is supposedly facing a language delay, he finds ways to use words surprisingly well. Example:
The other day I decided I wanted to read Joss Whedon’s Astonishing X-Men series, so I took Jared with me to a local comic books shop. I spent some time looking at the early readers’ books, but couldn’t find any comics Jared would get into. So as I’m making my purchase and getting ready to leave, Jared says, “They don’t have books for kids?”
Now this is Jared’s way of asking, “aren’t you going to buy me anything?” And since the answer to that was no, and they didn’t really have anything for kids at his reading level, I said, “No, it’s for grown-ups.”
Jared thinks about this for a moment and says loudly, “Yeah, they’re for grown-ups. Who are kids.” Ow!
I looked at the guy behind the counter who was bagging my comics and we both decided that we were going to pretend that we hadn’t heard him. Some things are just too painful to recognize. And no matter how well trained you are at defending your comics addiction to other adults (“What, you didn’t like Road to Perdition? What about From Hell?”), there’s nothing you can do when a 6-year-old calls you out for reading picture books.
In any case, when you wonder what Jared got from his mother after seeing his red hair and fair skin and identical hands, feet and ears to his dad, the answer is: the uncanny ability to put his father in his place.
Which is all a long way of getting to: I feel like I need to apologize to those people who regularly read this blog. I have this whole side of my life that I haven’t been talking about that I’m realizing is terribly important. There are things going on in the autism community that need to get out to the rest of the world. More importantly, there are lessons we can learn from autistic people that we can’t learn from anywhere else.
So hopefully, I’ll find some time to blog about all of this in the near future. You know, in my copious spare time.
If you’re somebody who is already involved in the autism community, you probably need to read Amanda’s Questions for Neurotypicals on Ballasexistenz. I don’t have the time to explain what that all means to the rest of the world, but if you’ve seen the way that autistics are treated, you’ll definitely get something out of it.